Sunday the nurses and doctor told us we would be able to take Alexa home Friday. We decided not to tell anyone, for fear of bad
karma. Last night we were still on for staying the night with her and taking her home
Friday. We said bye to all our friends and took pictures with all the nurses. Then, this morning our nurse told us Alexa had a serious episode last night that required oxygen to stabilize her. So, they've delayed her going home again. I guess it's a good thing she's not going home until she's ready - we're just ready for her to be ready. The doctor doesn't know what's wrong with her yet. He's concerned that her episodes are becoming more frequent and that she's having a hard time maintaining her body temperature. They did some tests on her this morning and because her red blood cell count was low, they decided she needs a transfusion. They'll do that today at 1:30.
As always, your prayers are much appreciated, felt, and needed.